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cystic fibrosis

The story of Cystic Fibrosis campaigner Orla Tinsley is one that captured my heart, as well as the hearts of the entire nation. Orla shared brave updates from her hospital bed as she waited for a lung transplant in New York for a harrowing nine-months.

Watching Orla’s journey unfold from the screen of my iPhone was surreal. I constantly checked her Instagram for updates, hoping and wishing she would receive that life-saving double lung transplant.


A post shared by Orla Tinsley (@orla_tinsley) on

She finally had her operation in December 2017 and will now share her story in an honest and raw documentary on RTÉ One tonight.

Orla Tinsley: Warrior will give a truthful portrayal of life on the transplant list. Orla will remind the world of just how important being an organ donor is by sharing her story.


A post shared by Orla Tinsley (@orla_tinsley) on

You won’t understand how valuable the organ donor card that is stuffed in the back of your purse is until you hear stories like Orla’s.

The documentary will remind us of the potential lives you can save by simply carrying an organ donor card.


A post shared by Orla Tinsley (@orla_tinsley) on

There was a point when Orla was put on life support at the New York Presbyterian Hospital. The inspiring activist wanted people to see every aspect of her journey. Despite her deteriorating health, Orla continued to let the cameras document her life, even though there was a chance she may not survive.

Speaking of the documentary, she shared: “My dream is to raise as much awareness about organ donation, transplant and CF as possible.”


A post shared by Orla Tinsley (@orla_tinsley) on

“It was extremely important for me to continue this in the most challenging time of my life. I share my transplant story in the hope it will help others going through transplant or situations like it all over the world,” she explained.

Orla hopes her documentary will encourage people to become organ donors. “I owe all things to my donor who has given me a second chance at life.”

Orla Tinsley: Warrior will air on RTÉ One tonight at 21:35.



An Irish campaigner for cystic fibrosis has received a call for a life-saving double lung transplant after days of waiting on life support.

Orla Tinsely, an Irish journalist who lives in New York, had received six previous calls about potential transplants, however all six donors were found to be unsuitable.

The 30-year-old shred the news on Twitter this morning, writing: "This morning we got a call but I wanted to wait. Well, here it is, Lucky Number7.  I’m not afraid.. Please send love, prayers and best wishes. Double lung transplant is a go! Love love love."

Twitter users were quick to offer to wish her with a number well-known faces offering their support.

An active campaigner for CF and organ donation, Orla called on the public to carry donors cards.

“Please carry a donor card and let your family know your wishes. Then you can live life and give life. Up to 8 people can be saved. I am currently on life support fighting intensely,” she said.

Orla's tireless campaigning led to the opening of a dedicated cystic fibrosis unit at St Vincent’s Hospital in Dublin in 2012.



Ed Sheeran granted a terminally ill girl one of her life’s wishes when she went to see him in concert.

Not only did Channan Petrides get to watch the Give Me Love singer do his thing on stage, Ed then invited her backstage so they could hang out after the show.

Channan, who suffers from cystic fibrosis, revealed how her “life is now complete” after getting to hang out with her favourite star.

Speaking to The Mirror, Ms Petrides said that “He was so lovely and genuine. He had a great sense of humour and was really easy to get on with.”

“He signed my programme and we took some selfies together. He smelt amazing.”

Channan has removed herself from the organ donor list so she can enjoy her time left to its fullest.

The 22-year-old explained on her Go Fund Me page that her next wish would be to go to The Brit Awards if it is at all possible.

“I would love to go to The Brit Awards next year and have the VIP experience of walking on the red carpet. I need everyone’s help to make this possible, much love x.”



Cork Airport is Happy – and it’s all in aid of Cystic Fibrosis Ireland.

The airport has created this great video to raise awareness of Cystic Fibrosis which affects over 1,100 people in Ireland – the largest proportion in the world.

Watch as everyone working and indeed visiting the airport joins in on the fun.

Including Darth Vader!

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